From the blog

An International Study on Pediatric Patients With Rare Tumors. (PARTNER)

Published: July 25, 2025

Primary Outcome Measures

  • Epidemiology
  • Use of International Recommendations
  • Survival of children and adolescents (0-18 years) affected by Very Rare Tumors

Inclusion Criteria

  • Children and adolescents (age 0-18 years) with a primary or relapsed Very Rare Tumor diagnosed and/or treated in a participating country/center.
  • Written informed consent from the patient and/or the parent/legal guardian

Exclusion Criteria

  • Absence of Written informed consent from the patient and/or the parent/legal guardian
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